New Program

We have been doing the new program with Ezra for a couple of weeks now. There is light therapy, which involves using a spotlight about 40 times a day, and using an airhorn to stimulate his hearing. We are making a homemade formula with chicken broth and liver. It smells as good as it sounds!! Ezra also gets a hot water bath every night to simulate being in the womb again. All of these things are supposed to help his brain grow and develop. Ezra does seem to be more aware of what is going on around us and lets us know when he has had enough. In fact, as I am writing this he is giving Micah a fit.

There is a praise to report!! Ezra had another EEG this week and it looks like he is outgrowing the infantile spasms! Our prayer now is that the infantile spasms will not turn into another kind of seizure.

Micah and I are still looking into fundraising ideas for the oxygen chamber. Please continue to pray for us while we make decisions about this.

Here are some pictures of Ezra sleeping...I noticed I have a ton of these, but I cannot help myself...he is so cute!!

Hyperbaric Oxygen Therapy

Part of the program that the Family Hope Center set for Ezra includes daily hyperbaric treatments. Now, we have some options for this. We could go to a hyperbaric clinic and pay several hundred dollars for each treatment, which could be upwards of 100, or we could purchase our own portable chamber for home use. Since we live in a small town in the Midwest, the most logical answer is to purchase our own chamber. Micah and I have spent numerous hours in prayer about this decision and we have decided to purchase. We have no idea where the money will come from, but we also know there is a Provider of our needs. Please pray for a clear direction for Micah and I to begin fundraising. You can read more about hyperbaric treatments online at google.com or ask.com.

Here is a picture of Ezra sleeping...

Ezra's Hospital Tours

We are now home from the two week "vacation" in Philly. The conference at the Family Hope Center was very informative and Ezra's evaluation went well. We learned about how the brain works and what we can do to help Ezra's grow. Now, while all this was going on, we were also in and out of the hospital with Ezra. Somehow, he picked up a virus which led to bronchiolitis. We ended up going to five hospitals and had two hospitalizations before it was all said and done. Ezra is feeling much better and we have begun the new program with him. Thank you for your prayers for us as our ordeal happened.